David
Huntley was an iron man athlete, a professor emeritus at San Diego State
University, a father, and a husband. In 2013, he was diagnosed with the deadly
genetic illness ALS, more commonly known as Lou Gehrig's Disease.
Before
he passed away on July 4, 2015, Huntley wanted to try a promising new drug
called GM604, but it hadn't been approved yet by the Food and Drug
Administration (FDA). Huntley was denied access to GM604.
"How is keeping
a potentially life saving drug saving my life?," said Huntley. "The decision to
use an investigational drug to fight a fatal disease should be between a patient
and his or her doctor."
Two years ago, The Goldwater Institute, a
free-market think tank based in Arizona, designed a model bill for states that's
changing the law to allow terminally ill patients to go around the FDA approval
process. The initiative is called "right to try."
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